本书首度以帕金森氏症病人的角度,分享作者患病前后的生活与心路历程。从一开始质疑自己为何会得到帕金森氏症?到慢慢去认识与接纳这个颇为缠人的慢性病;透过各种医疗、运动与信仰上的帮助,作者找出面对帕金森氏症的身心调整之道。本书透过作者与家人的对话,以及一些隽永的有趣案例,栩栩如生的剖析帕金森氏症,是如何对一向生龙活虎般的他,产生如此重大的影响,但同时也给了他一个重新认识人生的机会!
希望这本幽默、感人的小书,可以给帕金森氏症病友、家属、相关医疗人员,甚至其他关心这个病症的读者,带来一丝内心的盼望与安慰!
本书作者除了与两位良医密切配合外,还做了下列许多「自我锻炼」的心力活动:
●宗教信仰:每天祷告认罪悔改,并把所有难处托付给神。
●每周六登山健行:风雨无阻挑战登山健行,来练体力、耐力、意志力等,放松心情欣赏美景;并可做一周以来各项运(活)动的总验收。
●不时地唱歌:让五脏六腑活动,也让心情愉快;记歌词使脑筋不退化。
●时常慢跑:锻炼体力,也消除压力。
●每周日团练笑笑功:培养正向心态,也改变扑克牌脸。
●时常游泳:维持身体平衡并增强体力。
●时常跳舞:让肢体各方协调、身体平衡。
●勤练书法:培养专注力,增强右手的力道。
●每日做拍打功:让全身放松,经脉畅通。
●每天做平甩功:改变先天体质与造化,对各种疾病都有疗效。
●针灸治疗:活络经脉,流通血气。
*意志力突破:以上各项活动,得依照个人症状,选择自己喜欢且可行者三、五项。
每日或有机会就认真实行,坚持到底,必然日起有功。
*近来,我每天都做平甩功100分钟(5,000下)以上;并每周针灸三次。
Wow! I was Diagnosed with Parkinson's Disease!
After his retirement, Dr. Chen was diagnosed with Parkinson's disease. For an initial period of depression and disappointment, he decided to set out to learn more about his disease. Overtime, he learned that Parkinson's disease was not-so deadly, and eventually even learned how to co-exist with it. This book draws on Dr. Chen's experiences in dealing with incidents of motor dysfunction symptoms as well as other physical, psychological, and social impacts he endured as part of his condition.
Additionally, the author makes use of humor, irony and anecdotes from his daily struggles with accompanied symptoms in order to demonstrate how a combination of family support, modern medicine, exercise and religion enabled him to cope with the disease. This book is intended to serve as a practical reference guide for those patients and families who have and continue to suffer from Parkinson's disease as well as all others who may be concerned about this issue.
作者简介
程忠平(笔名)博士,是一位虔诚的基督徒。自公职退休后的隔年,他就被诊断出罹患帕金森氏症。这个病自此改变了他个人、家庭与周遭的人际关系,更严重影响他的生活品质,也让他从此不能再开车、不能用炉火烹调、随时小心步伐、谨防跌倒等不便!由于必须每天服用大量的药物,他一度饱受各种后遗症缠身,七度住院治疗与手术开刀。最初因某位医生开药不察,服药过当而出现强迫症,完全无法控制行为,而后又经历猝睡、幻觉、忧郁、健忘、失眠、便祕与身体异动等症状,经常遭到旁人不解的异样眼光,甚至出现对他的人身歧视!幸好他生性乐观,在教会与家人扶持下,能得到平静与安慰。后来经过两位神经内、外科医师的联手医治,重新调整用药与进行深层脑部电刺激手术(Deep Brain Stimulation, DBS),术后三年逐渐可以从事往昔的各项活动,如游泳、慢跑、健行、骑单车、登山、写毛笔字,甚至跳国标舞等。虽然是个「药罐子」,但他依然关心周遭的事物,随时伸出援手,也乐于分享病中的种种。由于他年轻时很会读书与考试,这些年在教会中辅导年轻人考公职。尽管罹患帕金森氏症,但他依然对生命充满热情,希望藉著这本小书,分享他这些年来的「奇幻之旅」!